Case Study
The academic medical center begins building an oncologic clinical data registry. Jane’s case, and many like hers, are very instructive for training purposes. This multidisciplinary effort is led by the Oncology Department and is seen as a way to enhance their institutional reputation as a leader in cancer care, as well as potential revenue stream for vendor participation. They would like to stand this up in 12-16 months.
Questions for Consideration
What are the trade-offs for the patient to participate in a clinical data registry?
List three technical considerations need to be addressed for this kind of effort?
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The trade-offs for the patient
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