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Health Promotion: Prevention of Disease
CASE STUDY: Family Member with Alzheimer’s Disease: Mark and Jacqueline Mark and Jacqueline have been married for 30 years. They have grown children who live in another state. Jacqueline’s mother has moved in with the couple because she has Alzheimer’s disease. Jacqueline is an only child and always promised her mother that she would care for her in her old age. Her mother is unaware of her surroundings and often calls out for her daughter Jackie when Jacqueline is in the room. Jacqueline reassures her mother that she is there to help, but to no avail. Jacqueline is unable to visit her children on holidays because she must attend to her mother’s daily needs. She is reluctant to visit friends or even go out to a movie because of her mother’s care needs or because she is too tired. Even though she has eliminated most leisure activities with Mark, Jacqueline goes to bed at night with many of her caregiving tasks unfinished. She tries to visit with her mother during the day, but her mother rejects any contact with her daughter. Planning for the upcoming holidays seems impossible to Mark, because of his wife’s inability to focus on anything except her mother’s care. Jacqueline has difficulty sleeping at night and is unable to discuss plans even a few days in advance. She is unable to visit friends and is reluctant to have friends visit because of the unpredictable behavior of her mother and her need to attend to the daily care. Reflective Questions
How do you think this situation reflects Jacqueline’s sense of role performance?
How do you think that Jacqueline may be contributing to her own health?
Provide examples of behavioral changes (functional, potentially dysfunctional, and dysfunctional) within the health patterns of families.
Full Answer Section
Wife Role: Her role as a wife to Mark is clearly suffering. She has "eliminated most leisure activities with Mark," "is unable to discuss plans even a few days in advance," and finds planning for holidays "impossible." Her inability to focus on anything but her mother's care means she is not performing the companionship, shared activity, and emotional support functions typically expected in a marital relationship. This can lead to strain, resentment, and a feeling of isolation for both her and Mark.
Mother Role: Her role as a mother to her grown children is severely impacted, as she is "unable to visit her children on holidays." This suggests a significant reduction in her ability to maintain connections, participate in family traditions, and experience the joys of being a mother to adult children. This separation, especially during holidays, could be a source of sadness or guilt for her.
Friend/Social Role: Jacqueline's social life has dwindled. She is "reluctant to visit friends or even go out to a movie" and "is reluctant to have friends visit." This indicates a complete breakdown in her social role performance. The unpredictable nature of her mother's behavior and her own exhaustion make her feel unable to manage social interactions, leading to isolation.
Individual/Self-Care Role: This role is almost entirely neglected. She goes to bed with "many of her caregiving tasks unfinished," has "difficulty sleeping at night," and is "too tired" for leisure activities. Her basic needs for rest, relaxation, and personal well-being are not being met. Her identity has become solely defined by her caregiving duties, overshadowing her individual needs and desires.
Overall, Jacqueline's sense of role performance is highly imbalanced and likely contributes to significant distress. While she is over-performing in her caregiver role (to her own detriment), she is under-performing or completely neglecting her roles as a wife, mother, friend, and individual. This can lead to feelings of inadequacy, guilt, resentment, and a loss of personal identity.
2. How do you think that Jacqueline may be contributing to her own health?
Jacqueline is significantly contributing to her own deteriorating health, both physically and mentally, through several mechanisms:
Chronic Sleep Deprivation: "Jacqueline has difficulty sleeping at night." This chronic lack of sleep directly impacts cognitive function, mood regulation, immune system strength, and overall physical energy levels. It exacerbates fatigue and can lead to a cycle of exhaustion.
Physical Exhaustion and Neglect of Basic Needs: She goes to bed with "many of her caregiving tasks unfinished" and is "too tired" for anything else. This suggests she's not getting adequate rest, perhaps not eating properly, and certainly not engaging in any physical activity for her own well-being. The constant demands of caregiving are physically taxing.
Social Isolation: "She is unable to visit friends and is reluctant to have friends visit." Social isolation is a known risk factor for depression, anxiety, and accelerated cognitive decline.Humans are social beings, and the lack of social connection removes a vital support system and outlet for stress.
Emotional Burden and Stress: The constant demands, her mother's "unawareness of her surroundings," rejection of "any contact," and "unpredictable behavior" create immense emotional stress. Her reassurances are "to no avail," which can be incredibly disheartening and emotionally draining. The "guilt" about not seeing her children and the "reluctance" to engage in leisure activities with Mark also contribute to a heavy emotional load.
Lack of Coping Mechanisms/Self-Care: Jacqueline has "eliminated most leisure activities." This indicates a complete absence of healthy coping strategies, stress reduction techniques, or activities that bring her joy and respite. Without these, stress accumulates unchecked.
Cognitive Overload and Inability to Focus: Her "inability to focus on anything except her mother’s care" and "unable to discuss plans even a few days in advance" suggest significant cognitive fatigue and potential mental health impacts like anxiety or depression, which impair executive function.
Potential for Malnutrition/Poor Eating Habits: While not explicitly stated, her overwhelming schedule and focus on caregiving suggest her own meals might be rushed, irregular, or consist of less nutritious options, further impacting her physical health.
In essence, Jacqueline is sacrificing her physical, mental, and emotional well-being on the altar of caregiving. This self-neglect, fueled by her sense of obligation and perhaps a feeling that no one else can adequately care for her mother, is a direct pathway to burnout, depression, anxiety, and a host of physical health problems.
3. Provide examples of behavioral changes (functional, potentially dysfunctional, and dysfunctional) within the health patterns of families.
Let's look at behavioral changes within the context of Gordon's Functional Health Patterns, focusing on the family as the client system, specifically Mark and Jacqueline's family unit.
1. Activity-Exercise Pattern: * Functional: Before the mother moved in, Mark and Jacqueline likely had shared leisure activities, such as going to movies or visiting friends/family. This indicates a healthy pattern of shared activities and recreation. * Potentially Dysfunctional: Jacqueline "has eliminated most leisure activities with Mark." This is potentially dysfunctional because while she is prioritizing care, the complete cessation of shared activities puts strain on the marital relationship and removes a vital stress-relief mechanism for Jacqueline. If this continues, it will become fully dysfunctional. * Dysfunctional: Jacqueline is "too tired" to engage in any leisure activities and goes to bed with "many of her caregiving tasks unfinished." This reflects a complete breakdown of healthy activity and rest cycles, leading to chronic exhaustion and burnout. Mark's planning for holidays becoming "impossible" due to Jacqueline's inability to focus also indicates severe disruption to family leisure.
Sample Answer
1. How do you think this situation reflects Jacqueline’s sense of role performance?
Jacqueline's situation profoundly impacts her sense of role performance across multiple domains:
Caregiver Role: This is the role she has fully embraced, to the point of self-neglect and the exclusion of other roles. Her commitment stems from a promise, which she is rigidly adhering to. However, despite her immense effort, her mother's "unawareness of her surroundings" and rejection of "any contact with her daughter" suggests that her performance in this role, while physically demanding, may not be yielding the emotional connection or recognition she might desire. This could lead to a sense of unfulfilled effort or even failure, despite her immense dedication.