A mid-term Policy Impact / Healthcare Narrative

A mid-term Policy Impact / Healthcare Narrative Interview will be due. The interviewee must be someone who has had health problems, or works with someone with health problems that impact their life expectations. The interviewee may be a family member, but not the student themselves! If you choose to interview a patient, do not violate any HIPAA policies or collect any protected health information (PHI). And if you choose to interview someone under 18, parents must be present during the interview and questions may be reworded as needed to be age appropriate for the child or parent.

Full Answer Section

       
  1. Analyzing the Narrative for Policy Implications: I can help you consider how the interviewee's story might connect to broader healthcare policies and identify potential areas for policy discussion.

Brainstorming Potential Interviewees (Keeping Restrictions in Mind):

Here are some categories of individuals you might consider interviewing (remembering they cannot be yourself):

  • Family Members (Other than Yourself): A parent, sibling, grandparent, aunt, uncle, etc., who has experienced a significant health problem.
  • Friends or Acquaintances: Individuals in your social circle (outside of healthcare professional roles, unless the focus is on their experience as a patient or caregiver).
  • Community Members: Individuals you might connect with through community organizations, support groups (while respecting privacy), or other non-clinical settings.
  • Caregivers (Non-Professional): Individuals who provide care for someone with health problems (e.g., a spouse caring for a partner, an adult child caring for a parent).
  • Individuals Working with People with Health Problems (in a non-clinical policy or advocacy role): For example, someone working for a patient advocacy organization, a disability rights group, or a community health initiative (ensure the focus remains on the impact on the individual).

Developing Interview Questions:

To gather a rich healthcare narrative and explore policy implications, consider questions like these (you can adapt them based on your interviewee and their situation):

Opening the Interview:

  • "Thank you for agreeing to speak with me today. I'm interested in understanding more about your experiences with health and how it has affected your life."
  • "To start, could you tell me a little bit about the health challenges you or someone you work with has faced?"

Exploring the Healthcare Narrative:

  • "Could you describe what it was like when you first started experiencing these health problems?"
  • "What have been some of the biggest challenges you've faced in dealing with this health issue?"
  • "Can you tell me about your experiences navigating the healthcare system (e.g., getting diagnoses, accessing treatment, dealing with insurance)?"
  • "What kind of support systems have been most helpful to you?"
  • "How has this health issue impacted your daily life, your work, your relationships, and your future expectations?"
  • "Are there specific moments or experiences related to your healthcare that stand out to you?"
  • "What are some of the things that have made managing this health issue easier or more difficult?"
  • "What are your hopes and concerns for the future regarding your health or the health of the person you work with?"

Exploring Policy Impact (Frame these gently, depending on your interviewee's awareness):

  • "Have you encountered any specific rules, laws, or policies that have made a difference (positive or negative) in your ability to access care or manage your health?"
  • "Are there any aspects of the healthcare system or related policies that you feel could be improved to better support people facing similar health challenges?"
  • "Based on your experiences, what kind of changes do you think would have the biggest positive impact on people dealing with [mention the general type of health problem]?"
  • "Have you ever had to advocate for yourself or someone else to get the care or support you needed? What was that experience like?"
  • "Are there any resources or services that you found particularly helpful or that you wish were more readily available?"

Closing the Interview:

  • "Thank you so much for sharing your story with me. Your insights have been incredibly valuable."
  • "Is there anything else you would like to share or any other thoughts you have on this topic?"

Ethical Considerations (Crucial!):

  • Informed Consent: Clearly explain the purpose of the interview and how the information will be used (for a class assignment). Ensure the interviewee understands they can stop at any time and that their identity will be kept confidential in your report (unless they explicitly agree otherwise, which is generally not needed for this type of assignment).
  • No PHI: Do not ask for or record any Protected Health Information as defined by HIPAA (in the US context). This includes names, dates of birth, medical record numbers, specific diagnoses (unless the interviewee volunteers this generally), treatment details that could identify them, etc. Focus on their experiences and the impact without needing specific medical details. Since you are in Kenya, be mindful of similar data protection principles and avoid collecting sensitive personal health information.
  • Anonymity and Confidentiality: Assure your interviewee that their identity will be kept private in your assignment. Use pseudonyms or refer to them generally (e.g., "a family member").
  • Voluntary Participation: Emphasize that their participation is entirely voluntary.
  • Respect: Be respectful of their time, their experiences, and their willingness to share potentially personal information.
  • Under 18: If interviewing someone under 18, ensure a parent is present throughout the interview and be prepared to reword questions to be age-appropriate and comfortable for the child. The parent's consent is essential.

Structuring Your Interview and Report:

Consider the following structure for your interview and the subsequent report:

  • Introduction: Briefly introduce the purpose of the interview and the interviewee (without revealing identifying details).
  • The Interview Narrative: Present the interviewee's story in a clear and organized way, highlighting the key events, challenges, and impacts of their health experiences. You can use direct quotes (anonymized) to bring their voice to life.
  • Analysis of Policy Impact: Based on the narrative, analyze how existing healthcare policies (or the lack thereof) have affected the interviewee's experiences. Identify potential policy implications or areas where changes might be beneficial.
  • Reflection: Include your own reflections on the interview process and what you learned about the impact of health problems and the role of policy.

Connecting the Narrative to Policy Implications:

As you listen to your interviewee's story, think about:

  • Access to Care: Did they face barriers to getting timely or appropriate medical care? What policies might influence this?
  • Affordability of Care: Were financial burdens a significant issue? How do insurance policies or public health programs play a role?
  • Support Services: What kind of support (e.g., home care, mental health services, support groups) was available or lacking? What policies govern these services?
  • Navigating the System: Was the healthcare system easy or difficult to navigate? Are there policies related to patient education, coordination of care, or bureaucratic processes that had an impact?
  • Specific Policies Mentioned: Did the interviewee directly mention any specific laws, regulations, or institutional policies that affected their experience?

By carefully listening and thoughtfully analyzing the interview, you will be able to create a meaningful report that fulfills the requirements of the assignment. Remember to prioritize ethical considerations throughout the process.

Sample Answer

       

My Role in Assisting You:

While I cannot conduct the interview myself (as I am not a person and cannot interact with individuals in that way), I can assist you in the following crucial steps:

  1. Understanding the Assignment Goals: I can help clarify the objectives of the interview and the connection to policy impact and healthcare narratives.
  2. Identifying Potential Interviewees: I can brainstorm categories of individuals who might fit the criteria (keeping in mind your restrictions).
  3. Developing Interview Questions: I can help you craft thoughtful and open-ended interview questions that elicit rich narratives and insights into the impact of health problems and related policies.
  4. Understanding HIPAA and Ethical Considerations: I can reiterate the importance of adhering to ethical guidelines and avoiding the collection of PHI.
  5. Structuring Your Interview and Report: I can help you think about how to structure the interview and organize your findings for your assignment.